"Be happy for this moment. This moment is your life." - Omar Khayyam
Today was the 3rd of 5 sequential days of Campath medication. It's old news by now which Elise put an exclamation point on by doing math homework during 2 hour the IV infusion! I was shocked. I guess chemo is just so yesterday... Funny how something like chemotherapy can become mundane, but I'm happy its going well and she's adjusting to it.
Elise has two more days of Campath (Saturday and Sunday), which should be pretty boring since, except for the inpatient wings of the Clinical Center building, NIH mostly shuts down over the weekend. I think there are maybe three other kids on the wing.
So tomorrow and Sunday are doses of Campath and not much else going on.
On Sunday night she'll get a dose of a prophylactic anti-seizure medication in preparation for the Busulfan chemo treatment on Monday and Tuesday. Busulfan can cause seizures at higher doses and while Elise will be getting a relatively low dose (compared to, say, a leukemia patient), they want to make sure she won't have a seizure.
Elise had been bummed that she was going to miss the opening of the movie "How To Train Your Dragon 2" because she'd be in the hospital. She really liked the original movie and was looking forward to the sequel all year. But she's been doing well on the Campath regimen and so when the medical team did rounds today she asked if she could get a pass to go to the movies. She was all smiles when they said "Yes".
So after a session with the counselor and an hour with her tutor, they released her for the evening. We went to the movie (which was really good), went out for dinner, and then dropped by the apartment for a fresh set of clothes and a few odds and ends (paying bills, updating Becky's computer so she can do electronic scrapbooking, etc). It was a nice evening out, but now we're back in the hospital winding down for bed.
It's been a month since we left California for Maryland. I can't believe it. I hope the next 3 months go just as fast!
I'm happy to read that the treatments are going well and that Elise was able to see Godzilla and How to Train Your Dragon 2. We miss you back at work. Especially Don haha. He made the comment how he only planned to be in your office for the mornings but he has to stay in the afternoon too.
ReplyDeleteYour family is in my thought and prayers. :-)
Thanks Kat. Funny to say, but I miss being at work. Really. It's nice to know that filling in for me takes more than just a few hours a day ;-)
ReplyDeleteI started reading about your families incredible journey just last week and I feel completely "small".....I wish I would have known but that's neither here nor there. I have shared your blog with my family for so many reasons. Elise is the Hope and Strength for so many families that need to be reminded that the obstacles ahead may seem BIG right now but the human body/mind/and spirit is a powerful thing.....Elise is a beautiful young lady and an inspiration!
ReplyDeleteGo Elise!!!!!