Tuesday, July 22, 2014

Forecast is Hot and Sweaty (D+32)



"When eating an elephant take one bite at a time." - Creighton Abrams

They did formally discharge Elise yesterday from inpatient status. She's actually doing well enough that they are trying a Monday and Thursday outpatient check in instead of the everyday we'd expected to hear. So if things continue to go well she'll need to get blood work on Monday mornings at 7:30 am and Thursdays at 9 am. If there are any other appointments then they'll schedule them then.

We've coordinated with the tutor and she'll meet with Elise twice a week until school starts and then we'll transition to a 2 hour per day routine.

We did get a long talk about planning to stay until D+100. They said we'd really be getting antsy by D+80 but that we really do need to stick around because their experience shows that medical issues do arise.

Elise is doing well enough that I think we're all antsy now. Not sure what we're going to be like at D+80 or D+100!

As for medical stuff the ophthalmologist said Elise's vision blurriness probably isn't coming from any permanent physiological changes to her eyes. Probably just a short term reaction to the conditioning process. Chemo therapy can apparently affect the control of focusing much like happens as we age. So we bought Elise some readers for the short term and she'll get checked again in a few weeks.

Her blood levels continue to look good and her liver function continues to improve (she had elevated liver function counts on her recent blood tests).

Today we went to the National Harbor area for a while. It was pretty steamy but mostly overcast (which is good for Elise since she's sensitive to the sun for the next several months). We walked around and had lunch at a shady outdoor terrace. It was pretty steamy but I reminded Becky that we wouldn't even consider eating outdoors at noon in Ridgecrest during July, so it's all relative.

As you can see from the picture above, Elise's appetite is returning. She still has some issues with lack of certain types of taste (the taste of sweets isn't very strong), but she's increasingly interested in eating rather than us having to remind her all the time.

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